{"id":6628,"date":"2026-05-27T10:27:24","date_gmt":"2026-05-27T09:27:24","guid":{"rendered":"https:\/\/deafblindness.info\/?post_type=resource&p=6628"},"modified":"2026-05-27T10:56:16","modified_gmt":"2026-05-27T09:56:16","slug":"viata-dincolo-de-simturi","status":"publish","type":"resource","link":"https:\/\/deafblindness.info\/ro\/resource\/viata-dincolo-de-simturi\/","title":{"rendered":"Via\u021ba dincolo de sim\u021buri!"},"content":{"rendered":"\n

Aceast\u0103 resurs\u0103 prezint\u0103 experien\u021ba unei persoane cu surdocecitate \u0219i modul \u00een care aceasta percepe \u0219i navigheaz\u0103 lumea prin mecanisme de adaptare \u0219i compensare. Sunt descrise reperele senzoriale, strategiile de autonomie \u0219i rolul sprijinului familial \u00een via\u021ba de zi cu zi, precum \u0219i importan\u021ba evalu\u0103rii timpurii, a planului individual de comunicare, a tehnologiilor asistive \u0219i a sprijinului comunit\u0103\u021bii \u00een dezvoltarea independen\u021bei \u0219i incluziunii sociale a persoanelor cu surdocecitate.<\/p>\n\n\n\n

Versuri de Oana Ene, Profesor Psihopedagog, Psihoterapeut, Pre\u0219edinte Asocia\u021bia Dincolo de Sim\u021buri<\/strong>.<\/p>\n\n\n\n

Cum percepem lumea noi, persoanele cu surdocecitate?<\/h1>\n\n\n\n

Via\u0163a persoanelor cu surdocecitate este o experien\u0163\u0103 care implic\u0103 at\u00e2t pierdere total\u0103 sau par\u0163ial\u0103 a vederii, c\u00e2t \u015fi a auzului. Iar acest factor influen\u0163eaz\u0103 semnificativ filtrul prin care noi percepem realitatea. Atunci c\u00e2nd cele dou\u0103 sim\u0163uri sunt afectate, \u00een creier se \u00eent\u00e2mpl\u0103 un fenomen care poart\u0103 denumirea de neuroplasticitate. Iar ariile cerebrale care \u00een mod obi\u015fnuit se ocup\u0103 de procesarea informa\u0163iilor din mediu, prin v\u0103z \u015fi auz, acum proceseaz\u0103 informa\u0163ii venite prin sim\u0163ul olfactiv, kinestezic \u015fi informa\u0163ii tactile dar valorific\u0103 orice semnal vizual sau auditiv care poate fi perceput. Creierul folose\u015fte toate resursele de care dispune pentru a crea o hart\u0103 a realit\u0103\u0163ii mult mai complex\u0103 dec\u00e2t pare la prima vedere. De aceea eu cred c\u0103 nu exist\u0103 dou\u0103 persoane cu surdocecitate la fel. Fiindc\u0103 mecanismele de adaptare, func\u0163ionare si compensare sunt at\u00e2t de complexe.<\/p>\n\n\n\n

Adaptare, percep\u021bia mediului \u0219i via\u021ba de zi cu zi<\/h1>\n\n\n\n

\u00cen via\u0163a de zi cu zi toate aceste mecanisme de compensare \u015fi adaptare ne ajut\u0103 sa navig\u0103m prin mediu exterior. \u00cen cazul meu, locurile familiare \u015fi traseele cunoscute nu m\u0103 solicit\u0103 prea mult fiindc\u0103 mi-am creat deja repere. Reperele mele, fiindc\u0103 am pu\u021bine resturi de vedere \u0219i auz, sunt semnale luminoase, o cas\u0103 sau un gard care are o culoare mai strident\u0103, sau sunetul semaforului acolo unde ele exist\u0103, vibra\u021biile pe care le d\u0103 tramvaiul atunci c\u00e2nd se apropie, mirosul de la cafenele sau restaurante care \u00eemi indic\u0103 ca m\u0103 apropiu de destina\u021bie. Dar atunci c\u00e2nd este \u00eentuneric afar\u0103 sau locul e complet necunoscut prefer sa iau o ma\u0219in\u0103 ride-share. Asta m\u0103 face s\u0103 m\u0103 simt \u00een siguran\u021b\u0103. \u00cens\u0103 atunci c\u00e2nd merg \u00een c\u0103l\u0103torii sau pe distan\u021be mai lungi, \u00een locuri foarte aglomerate, prefer s\u0103 m\u0103 \u00eenso\u021beasc\u0103 cineva, m\u0103 simt mult mai \u00een siguran\u021b\u0103. Iar de cele mai multe ori merg cu so\u021bul meu, el \u0219tie exact toate informa\u021biile \u0219i descrierile de care am nevoie pentru a m\u0103 familiariza cu mediul.<\/p>\n\n\n\n

C\u00e2nd sunt acas\u0103, cel mai important pentru mine e ca lucrurile s\u0103 nu fie mutate de la locul lor fiindc\u0103 dup\u0103 aceea sunt greu de g\u0103sit \u0219i prefer s\u0103 economisesc timp. La \u00eendeletnicirile casnice m\u0103 bazez foarte mult pe sim\u021bul tactil, de exemplu atunci c\u00e2nd dau cu aspiratorul o fac \u00een picioarele goale, a\u0219a pot sim\u021bi dac\u0103 r\u0103m\u00e2n firmituri sau nu. C\u00e2nd \u0219terg praful, cu o m\u00e2n\u0103 \u021bin c\u00e2rpa \u0219i \u0219terg praful iar cu cealalt\u0103 m\u00e2n\u0103 verific dac\u0103 am cur\u0103\u021bat peste tot. Cred c\u0103 marele meu noroc este mama, fiindc\u0103 ea nu a acceptat s\u0103 nu pot face lucruri pentru a fi independent\u0103 \u0219i astfel a dezvoltat ni\u0219te strategii astfel \u00eenc\u00e2t s\u0103 pot face de toate, dar \u00een felul meu. Astazi sunt at\u00e2t de independent\u0103 datorit\u0103 ei.<\/p>\n\n\n\n

Provoc\u0103ri \u0219i sprijin \u00een via\u021ba persoanelor cu surdocecitate<\/h1>\n\n\n\n

Provoc\u0103rile pentru noi, persoanele cu surdocecitate, sunt evidente \u0219i cer mult\u0103 energie \u0219i concentrare, \u00een mediile necunoscute, \u00een interac\u021biunile sociale noi, \u00een centrele comerciale sau locurile foarte obositoare \u0219i aglomerate. Dar mecansimele de adaptare, sprijinul celor din jur, tehnologiile asistive, programele de \u00eenv\u0103\u021bare, comunitatea sprijinul reciproc \u0219i prietenii fac ca via\u021ba s\u0103 fie un dar.<\/p>\n\n\n\n

Pentru cei care doresc s\u0103 ne fie al\u0103turi \u0219i s\u0103 ne ofere sprijin, vreau s\u0103 men\u021bionez  c\u00e2teva strategii care fac diferen\u021ba. <\/p>\n\n\n\n

Strategii de sprijin<\/h1>\n\n\n\n

Prima etap\u0103 este evaluarea complex\u0103. Aceast\u0103 evaluare care este recomandat s\u0103 fie f\u0103cut\u0103 c\u00e2t mai timpuriu posibil, are mai multe ramuri \u0219i anume:<\/p>\n\n\n\n

    \n
  • Evaluare senzorial\u0103, c\u00e2t vede \u0219i c\u00e2t aude persoana sau \u00een cazurile fericite, timpurii, copilul.<\/li>\n\n\n\n
  • Evaluarea tipului de comunicare potrivit, poate fi comunicare tactil\u0103, limba semnelor, Braille sau simbolic\u0103.<\/li>\n\n\n\n
  • Evaluarea autonomiei, a mobilit\u0103\u021bii, a motricit\u0103\u021bii fine \u0219i grosiere precum \u0219i a activit\u0103\u021bilor zilnice efectuate.<\/li>\n\n\n\n
  • Evaluare emo\u021bional\u0103, dac\u0103 persoana cu surdocecitate se simte izolat\u0103, sau simte anxietate, de asemenea poate fi evaluat nivelul stimei de sine.<\/li>\n<\/ul>\n\n\n\n

    Urm\u0103torul pas este stabilirea planului individual de comunicare. Fiindc\u0103 specificul acestei dizabilit\u0103\u021bi este at\u00e2t de complex, comunicarea joac\u0103 un rol fundamental \u00een procesul de interven\u021bie.<\/p>\n\n\n\n

    Procesul continu\u0103 cu stabilirea unei persoane de spijin specializate, care s\u0103 interpreteze pentru persoana cu surdocecitate ce se \u00eent\u00e2mpl\u0103 \u00een mediul exterior, faciliteaz\u0103 rela\u021bii sociale, construie\u0219te autonomia \u00een mod gradat pentru copilul sau persoana cu surdocecitate. Din p\u0103cate acest drept lipse\u0219te cu des\u0103v\u00e2r\u0219ire \u00een Rom\u00e2nia. Iar rolul acestui specialist este luat de cele mai melte ori de unul din p\u0103rin\u021bi sau de cineva din familie, cu men\u021biunea c\u0103 cei din familie din pacate nu cunosc forma individual\u0103 de limbaj al persoanelor cu surdocecitate \u0219i prin urmare acest rol este \u00eendeplinit par\u021bial.<\/p>\n\n\n\n

    Mediu predictibil \u0219i implicarea comunit\u0103\u021bii<\/h1>\n\n\n\n

    O alt\u0103 etap\u0103 este stabilirea unui mediu predictibil \u0219i familiar. Exact cum am men\u021bionat mai sus \u00een exemplul meu, este recomandat ca obiectele s\u0103 aib\u0103 locuri fixe unde le putem gasi u\u0219or.  Rutinele trebuie s\u0103 fie clare \u0219i predictibile,  f\u0103r\u0103 schimb\u0103ri bru\u0219te \u0219i cu eventuale descrieri tactile sau luminoase ale spa\u021biului.<\/p>\n\n\n\n

    De asemenea suportul familial \u0219i comunitar asigur\u0103 un ecosistem sigur \u0219i de suport. Un exemplu minunat pe care l-am experimentat a fost cel oferit de Sense Interna\u021bional Rom\u00e2nia, unde s-au creat grupuri de suport pentru noi, persoanele cu surdocecitate. dar \u0219i pentru p\u0103rin\u021bi. Ei au desf\u0103\u0219urat proiecte de educare a comunit\u0103\u021bii cu privire la impactul pe care \u00eel are surdocecitatea \u00een vie\u021bile noastre. Proiectele organiza\u021biei \u0219i vizitele desf\u0103\u0219urate cu cortul senzorial \u00een \u0219coli, diferite institu\u021bii, firme dar \u0219i \u00een locuri publice, aduc un real impact asupra societ\u0103\u021bii. Totodat\u0103, implicarea direct\u0103 \u00een stabilirea de parteneriate cu 25 de \u0219coli din Rom\u00e2nia dar \u0219i cu institu\u021bii ale statului unde, fiind sprijini\u021bi de ei, am \u00eenv\u0103\u021bat s\u0103 lupt\u0103m pentru drepturile noastre.<\/p>\n\n\n\n

    Tehnologii asistive \u0219i instrumente de sprijin<\/h1>\n\n\n\n

    \u00cenv\u0103\u021barea \u0219i utilizarea tehnologiilor informatice \u0219i asistive este un alt punct cheie. Aceste tehnologii ne \u00eembun\u0103t\u0103\u021besc via\u021ba \u0219i, mai mult dec\u00e2t at\u00e2t, ne faciliteaz\u0103 accesul direct la ea. \u021ain s\u0103 men\u021bionez c\u0103 personal eu nu a\u0219 fi fost ast\u0103zi aici dac\u0103 nu a\u0219 fi avut acces la aceste tehnologii, aparatele auditive, ochelari. Laptopul care are diferite tehnologii adaptate special pentru mine, telefonul care are scrisul m\u0103rit \u0219i multe altele care \u00eemi sunt de mare ajutor. Diferite platforme unde \u00eemi pot asculta direct \u00een aparatul auditiv c\u0103r\u021bile, Hubul Global de Resurse pentru Surdocecitate unde am g\u0103sit informa\u021bii pre\u021bioase \u0219i mi-am satisf\u0103cut curiozitatea despre cum arat\u0103 resursele despre surdocecitate disponibile \u0219i \u00een alte \u021b\u0103ri.  Sistemele de orientare cum ar fi bastonul sau semaforul vorbitor sunt de asemenea utile.<\/p>\n\n\n\n

    Via\u021ba dincolo de sim\u021buri<\/h1>\n\n\n\n

    Toate aceste instrumente de sprijin pe care le-am men\u021bionat fac diferen\u021ba \u00een via\u021ba unei persoane cu surdocecitate \u0219i \u00een calitatea vie\u021bii, \u00een integrarea social\u0103 sau \u00een accesul \u00een profesie \u0219i via\u021b\u0103 independent\u0103.<\/p>\n\n\n\n

    Lumea nu este doar ceea ce se vede sau ce se aude. Lumea experimentat\u0103 de noi, persoanele cu surdocecitate, poate fi o lume dincolo de sim\u021buri prin felul propriu  de a tr\u0103i \u0219i de a sim\u021bi. Pentru noi acest\u0103 lume se construie\u0219te prin sprijin, rela\u021bii, sens \u0219i alte c\u0103i \u0219i metode de acces la experien\u021b\u0103.<\/p>\n\n\n\n

    Bibliografie<\/h1>\n\n\n\n
      \n
    • If you can see it, you can support it (Nordic model).<\/li>\n\n\n\n
    • Guidelines on Best Practice for Persons Living with Deafblindness<\/li>\n\n\n\n
    • Publica\u021bii ale Deafblind International<\/li>\n\n\n\n
    • Publica\u021bii ale CBM (Christoffel-Blindenmission)  ghiduri de interven\u021bie \u0219i dezvoltare.<\/li>\n\n\n\n
    • Miles, B. & Riggio, M.  Deafblindness: Educational Service Guidelines.<\/li>\n\n\n\n
    • McInnes, J.M.  A Guide to Planning and Support for Persons with Deafblindness.<\/li>\n\n\n\n
    • Rowland, C.  Communication Strategies for Children with Sensory Disabilities.<\/li>\n\n\n\n
    • Hatlen, P.  Orientation and Mobility for Individuals with Dual Sensory Loss.<\/li>\n\n\n\n
    • Obretenova S., et al. (2010).<\/li>\n\n\n\n
    • Neuroplasticity Associated with Tactile Language Communication in a Deaf-Blind Subject.<\/li>\n\n\n\n
    • Frontiers in Human Neuroscience. fMRI)<\/li>\n\n\n\n
    • https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC2805429\/<\/li>\n\n\n\n
    • Villwock A., et al. (2022).<\/li>\n\n\n\n
    • Somatosensory processing in deaf and deafblind individuals: Determinants for neuroplasticity.<\/li>\n\n\n\n
    • Frontiers in Psychology.<\/li>\n\n\n\n
    • https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2022.938842\/full<\/li>\n<\/ul>\n\n\n\n
      \"[Descriere
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      Perspectiva personal\u0103 a unei persoane cu surdocecitate asupra vie\u021bii, explor\u00e2nd modul \u00een care adaptarea, tehnologiile asistive \u0219i sprijinul comunit\u0103\u021bii contribuie la autonomie \u0219i la construirea unei vie\u021bi independente.<\/p>\n","protected":false},"featured_media":0,"template":"","resource_cats":[233,237],"countries":[286],"class_list":["post-6628","resource","type-resource","status-publish","hentry","resource_cats-intelegerea-surdocecitatii","resource_cats-povesti-si-experiente-ro","countries-romania"],"acf":[],"yoast_head":"\nVia\u021ba dincolo de sim\u021buri! - Global Deafblindness Resource Hub<\/title>\n<meta name=\"description\" content=\"Perspectiva personal\u0103 a unei persoane cu surdocecitate asupra vie\u021bii, explor\u00e2nd modul \u00een care adaptarea, tehnologiile asistive \u0219i sprijinul comunit\u0103\u021bii contribuie la autonomie \u0219i la construirea unei vie\u021bi independente.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/deafblindness.info\/ro\/resource\/viata-dincolo-de-simturi\/\" \/>\n<meta property=\"og:locale\" content=\"ro_RO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Via\u021ba dincolo de sim\u021buri! 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